This year, Brooke and Aaron Lyons will be the hosts of our dunk tank with all proceeds going to PPMD (Parent Project Muscular Dystrophy) in honor of their son Ryker who is battling against Duchenne. Learn a little more about Ryker and support him by dunking the lucky guys and gals volunteering to be in the tank!
Ryker is a 6 year old boy living here in Seaford with Duchenne. He is so brave; enduring countless medical procedures and tests since he was sixteen months old.
He is currently participating in groundbreaking clinical trial research that is partially funded by PPMD.
Duchenne Muscular Dystrophy is a catastrophic muscle wasting disease with a 100% mortality rate. It effects 1:2,500 live male births. Regardless of family history, it can happen to anyone. Duchenne is caused by mutations in the gene that encodes for a muscle protein called dystrophin. Dystrophin is in every single muscle fiber in our bodies. Dystrophin acts as the glue that holds muscles together and the "shock absorber” that allows muscles to contract and relax without being damaged. Without dystrophin, muscles are not able to function or repair themselves properly. As muscles are used for normal day-to-day activity, tiny tears are created in the muscle. Because there is no dystrophin, the muscles can’t repair themselves by making new muscle, so the damaged muscle is replaced by fat and scar tissue. As muscle is replaced, the person with Duchenne loses muscle function and strength. There are many muscles in the body (skeletal muscles, heart muscles, breathing muscles, etc.). Because there are so many muscles in the body, many parts of the body can be affected by Duchenne.
For 23 years, PPMD (Parent Project Muscular Dystrophy) has invested in every single therapeutic possibility for Duchenne. They take a cutting-edge approach to accelerate finding treatments that will end Duchenne for every single person impacted by the disease. PPMD has invested more than $50 million into Duchenne research. Their advocacy and research backings have led to advancements inspiring an additional $500 million investment in research from the federal government.